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Behavior Management For Persons With Prader-Willi
Syndrome Collection People who have Prader-Willi syndrome (PWS) face
challenges in varying degrees, but many exhibit difficult behaviors that can create
barriers to success in any environment. Over the past 5-10 years, however, we have
gained an increased in knowledge about Prader-Willi syndrome and how to manage some of
these behaviors. People with PWS are all individuals. Many have similar
characteristics, but they all have their own idiosyncrasies. No one approach will
work for all people, all of the time. We hope this collection of articles will
provide you with a greater understanding of this disability along with a few more tools
and strategies in facing these challenging behaviors.
To order, click on the Order Form button, print out the Publications
order form, fill it out and send it to the address printed on the form or call the
National Office at 1-800-926-4797.
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Table of Contents
GENERAL ARTICLES ON BEHAVIOR CONCERNS
- "Understanding and Managing the Behavioral and Psychological Components of PWS" by Barbara Whitman, Ph.D.
- "Behavior Is Manageable" from the Gathered View
- PWS – Supporting Challenging Behaviors," by Paul White
- "Behavior and Your Child With PWS," by Janalee Heinemann, MSW, Parent and
Executive Director, PWSA(USA)
- "When the Neurological Valve Is Stuck Open: An Analogy and
Management Strategy for Preservation," by Barbara Whitman, Ph.D
- "Can Hypnosis Be Used in Managing Some of the Behaviors of PWS7" by Barbara
Whitman, Ph.D.
- Behavior Handout – taken from PWSA (USA) 1993 Calendar
- "Behavior Management Programs" by Dorothy Thompson
- "Coming Out of the Closet With PWS Behavior Problems" by Janalee Heinemann,
MSW
- Parent and Executive Director, PWSA (USA)
- "Early Childhood Behavior," by Sandy Orne-Adams
- "Behavior Management Is Proactive," from PWSA (USA) 1992 Calendar
- PWSA (USA) Policy Statement: "Adults With Prader-Willi Syndrome and Decisions
Regarding Least Restrictive Environment and the Right to Eat," PWSA(USA)
Scientific Advisory Board
- SHARING...Ideas, Thoughts, Feelings and Opinions About Behavior Management from Parents
and Professionals, The Gathered View
USE OF MEDICATIONS IN MANAGING BEHAVIORS
- "Psychiatric Medications in Prader-Willi Syndrome," by
Ivy Boyle, M.D.
SKIN PICKING
- "Skin Picking & Other Forms of Self Trauma in PWS," by Jeanne Hanchett,
M.D.
- "A Basic Treatment Plan for Skin Picking in PWS," by Jackson, Drago,
& Lister
- SHARING...Ideas, Thoughts, Feelings and Opinions About Skin Picking Behaviors from
Parents and Professionals, from the Gathered View
TOILET TRAINING TEACHING
- "Toilet Training Made Easy," by Linda Keder
- "Teaching Toileting Skills," by Barb Dorn
- "A Cure for Bedwetting," by Kelly Farrell
SOCIAL SKILLS TEACHING
- "Social Relationships k Social Understanding in Children with PWS," by
Helen Tager-Flusberg, Ph.D.
- SHARING...Ideas, Thoughts, Feelings and Opinions About Social Skills Training
from Parents and Professionals, The Gathered View
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