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Behavior Management for Persons with PWS book picture

Behavior Management For Persons With Prader-Willi Syndrome Collection

People who have Prader-Willi syndrome (PWS) face challenges in varying degrees, but many exhibit difficult behaviors that can create barriers to success in any environment.  Over the past 5-10 years, however, we have gained an increased in knowledge about Prader-Willi syndrome and how to manage some of these behaviors.  People with PWS are all individuals.  Many have similar characteristics, but they all have their own idiosyncrasies.  No one approach will work for all people, all of the time.  We hope this collection of articles will provide you with a greater understanding of this disability along with a few more tools and strategies in facing these challenging behaviors.

To order, click on the Order Form button,  print out the Publications order form, fill it out and send it to the address printed on the form or call the National Office at 1-800-926-4797.

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Table of Contents

GENERAL ARTICLES ON BEHAVIOR CONCERNS

  • "Understanding and Managing the Behavioral and Psychological Components of PWS" by Barbara Whitman, Ph.D.
  • "Behavior Is Manageable" from the Gathered View
  • PWS – Supporting Challenging Behaviors," by Paul White
  • "Behavior and Your Child With PWS," by Janalee Heinemann, MSW, Parent and Executive Director, PWSA(USA)
  • "When the Neurological Valve Is Stuck Open: An Analogy and Management Strategy for Preservation," by Barbara Whitman, Ph.D
  • "Can Hypnosis Be Used in Managing Some of the Behaviors of PWS7" by Barbara Whitman, Ph.D.
  • Behavior Handout – taken from PWSA (USA) 1993 Calendar
  • "Behavior Management Programs" by Dorothy Thompson
  • "Coming Out of the Closet With PWS Behavior Problems" by Janalee Heinemann, MSW
  • Parent and Executive Director, PWSA (USA)
  • "Early Childhood Behavior," by Sandy Orne-Adams
  • "Behavior Management Is Proactive," from PWSA (USA) 1992 Calendar
  • PWSA (USA) Policy Statement: "Adults With Prader-Willi Syndrome and Decisions Regarding Least Restrictive Environment and the Right to Eat,"  PWSA(USA) Scientific Advisory Board
  • SHARING...Ideas, Thoughts, Feelings and Opinions About Behavior Management from Parents and Professionals,  The Gathered View

USE OF MEDICATIONS IN MANAGING BEHAVIORS

  • "Psychiatric Medications in Prader-Willi Syndrome," by Ivy Boyle, M.D.

SKIN PICKING

  • "Skin Picking & Other Forms of Self Trauma in PWS," by Jeanne Hanchett, M.D.
  • "A Basic Treatment Plan for Skin Picking in PWS," by Jackson, Drago, & Lister
  • SHARING...Ideas, Thoughts, Feelings and Opinions About Skin Picking Behaviors from Parents and Professionals, from the Gathered View

TOILET TRAINING TEACHING

  • "Toilet Training Made Easy," by Linda Keder
  • "Teaching Toileting Skills," by Barb Dorn
  • "A Cure for Bedwetting," by Kelly Farrell

SOCIAL SKILLS TEACHING

  • "Social Relationships k Social Understanding in Children with PWS," by Helen Tager-Flusberg, Ph.D.
  • SHARING...Ideas, Thoughts, Feelings and Opinions About Social Skills Training from Parents and Professionals, The Gathered View
 

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