Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.


About PWSA (USA)

Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers:

  • a toll-free telephone number for information and referrals
  • a bimonthly newsletter, The Gathered View
  • publications and audiovisual presentations about PWS
  • an annual national conference for families and professionals
  • a nationwide network of local chapters, parents, and professionals
  • research funding to expand knowledge and treatment options
  • Representation on the international level

Organized in 1975 to provide a resource for education and information about Prader-Willi syndrome and support for families, professionals and other interested citizens, PWSA (USA) was first headquartered in the Minneapolis/St. Paul area, then in St. Louis, Missouri, and currently in Sarasota, Florida since October of 1997. The association is governed by a 15 member Board of Directors who, together with our management team, are responsible for directing the organization's operations and serving the state and regional chapters and their members.

PWSA (USA) Boards

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PWSA (USA) Staff Photo.  Click here for more details.

From left:  Mary K. Aide, Dale Cooper, Dottie Cooper, Amy Logan, Nerely Palomino, Debi Applebee, Kate Beaver.  Behind: Lin Sherman, Evan Farrar, Cindy Beles.
Missing: Janalee Heinemann,  Jodi O'Sullivan, Barbara McManus


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Combined Federal Campaign #10088