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7th Annual Valentine Research Fund Campaign:
How to Participate

Joining the 7th Annual Valentine Research Fund Campaign is simple! Participants send letters to their family and friends letting them know how they can show their love by donating to research to help find treatments and ultimately a cure for their loved one with PWS. Participants and/or their valentine can create a personal web page on Firstgiving.com/pwsausa  where donors can directly contribute. Here are the three steps you need to take:

Please read through all of the instructions below before you register.

1. All participants will register.  

2. You may choose to send your own letter or you may have PWSA (USA) create the letter for you.  Make this choice on the registration form. A sample letter will be available for you after you register.

3. If PWSA (USA) is creating your letter for you, please email a picture
of your sweetheart to dspencer@pwsausa.org  or mail a picture to :

PWSA (USA)
Attn: Diane
8588 Potter Park Dr. Ste 500  Sarasota, FL 34238

by Jan. 31, 2009

Your completed letter along with a Research Fact Sheet and Donation form will be emailed back to you ready to print.  If you are unable to print multiple copies of your letter and the forms, please call 800-926-4797 or email dspencer@pwsausa.org for help.

How to create your own personal Valentine webpage

You have the option to also create your own personal Valentine Research Fund Campaign web page on Firstgiving.com/pwsausa after you have registered.  To create your own page go to  www.firstgiving.com/pwsausa  Once you are on PWSA (USA)’s FirstGiving page, click on Get Started  

Then click on Select 7th Annual Valentine Research Fund Campaign.

Follow the page instructions.  It is a good idea to put a picture of your sweetheart on your web page.  Click Here to view a sample firstgiving page.

If you are creating your own letter, don’t forget to give directions to your firstgiving web page.  For help with this contact Diane at dspencer@pwsausa.org.

You are now ready to register.

Click Here

 

 

edited: 11/19/2008

 

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