Prader-Willi Syndrome Association of Michigan                      

 

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Resources and Links

 

Page Index

[Advocacy and IEP] [PWS Sites] [Michigan State Resources] [Research Publications] [Speech Therapy/Infant Feeding] [Occupational Therapy] [Physical Therapy] [Behavior and Development] [Nutrition and Diet] [Medical and Genetics] [Alternative Medicine]  [General Education] [Employment/Job Training ] [Acronym Soup]

 

Advocacy and IEP Information
Links:  

Arc Michigan

 

UCP Michigan -check out the Resources & Links, Workshops, and Policy Advocacy pages

 

Wrightslaw-Current information about special education laws and advocacy for children.  

 

IEP4U - 4000 sample IEP objectives and goals

 

Michigan Yellow Pages for Kids with Disabilities

  Michigan Protection and Advocacy Service
  CAUSE - Citizens Alliance to Uphold Special Education
Books  
  “Writing Measurable IEP Goals and Objectives”  By Barbara D. Bateman 
PWS Websites
Links  
  PWS Playroom
  PWSA UK
  PWSAUSA -official Prader-Willi Syndrome Association Website - Gold Source of information
Michigan  Resources
Links National Dissemination Center for Children with Disabilities (NICHCY) --Site includes an extensive listing of State and Federal Agencies and Organizations
  Michigan Center for Educational Networking
  YellowPages for Kids with Disabilities
Research Publications
Links:  
   
Speech Therapy and Infant Feeding Information
Links: Apraxia Kids
Prompt Institute- speech therapy method often successful with children with Apraxia
  New Visions provides continuing education and therapy services to professionals and parents working with infants and children with feeding, swallowing, oral-motor, and pre-speech problems.
  SuperDuper Catalog of Speech Aids
Occupational Therapy Information
Links:  
  Handwriting Without Tears -useful tools for teaching printing and cursive
  e-Bility information, resources, services and products of interest to people with disabilities (including classifieds)
  Integrations Catalog for OT Aids
Books:  
  "The Out-of-Sync Child" written by Carol Kranowitz, O.T.
Physical Therapy Information
Links:  
  Baby Builders - exercize tools
  Adaptive Bicycle Training Wheels
Behavior and Development Information
Links:  
  Zero to Three
  National Institute of Child Health and Human Development
   
Books  
  The Explosive Child, Ross W. Greene, PhD. HarperCollins Publishers
  The Child with Special Needs -- Encouraging Intellectual and Emotional Growth", Stanley Greenspan and Serena Wieder with Robin Simon. Merloyd Lawrence Publisher
   
   
Nutrition and Diet
Links:  
  MyPyramidTracker ---USDA Diet/Exercize Tracking & Planning Tool
   
Books  
Medical and Genetics
Links:  
Michigan's Genetics Resource Center
Genetics Science Learning Center - University of Utah  / Helping people understand how genetics affects their lives and society.
Medical Genetics - University of
The Human Growth Foundation helps children and adults with disorders related to growth or growth hormone through research, education, support and advocacy.
Clinical Trials.gov  A service of the National Institutes of Health
MedicineNet.com - descriptive dictionary-type site
MedScape  - from WebMD
Books  
 
Alternative Medicine
Links: QuackWatch - Your Guide to Quackery, Health Fraud, and Intelligent Decisions
Cytomed - Natural Product Education and Marketing (CoEnzyme -Q10)
National Center for Complementary and Alternative Medicine
 
Education
Links:  
Great Schools website for information and support for children with learning difficulties
The School Bell - Teacher and Parent Activities for early reading and math skills (pre-school and elementary aged) - See Dolch Kit, Number Families, Kid Pix Equations, Etc. Great Links and Activities.
FactMonster - educational website for kids
FunBrain -educational website for kids
StarFall -educational website for kids
Half Pint Kids Books for teaching early reading
Employment/Job Training
  MARO Michigan Employment and Training Association
  MId Michigan Industries - MMI - central Michigan jobs and training
Acronym Soup by Signe Ruddy
BIP Behavior intervention plan:  a plan developed by parents and staff to target individualized behavior goals and needed interventions for a student with inappropriate, disruptive, or disobedient behaviors.
CI Cognitive impairment
ECDD  Early childhood developmental delay
ECSE Early childhood special educations programs or services
EDP Employability development plan:  a document that supports a student's individualized career exploration and vocational training experiences.
EI Emotionally Impared
ADD Attention Deficit Disorder
ADHD Attention deficit hyperactivity disorder
ADL Activities of daily living
BTP Behavior treatment plan
DCW Direct care worker
CPS Child Protective Services
PCP Person Centered Plan:  This is the procedure done with your local Community Mental Health  to ensure that the development of individual plans of service and provisions of services utilizes a person centered planning process and is guided by the principals of self-determinations.  
IEP Individual Education Program:  A written statement for each student with a disability that identifies the specially designed instructions and related services necessary to provide the student with an individually appropriate education.

 

Page Index

[Advocacy and IEP] [PWS Sites] [Michigan State Resources] [Research Publications] [Speech Therapy/Infant Feeding] [Occupational Therapy] [Physical Therapy] [Behavior and Development] [Nutrition and Diet] [Medical and Genetics] [Alternative Medicine]  [General Education] [Employment/Job Training ] [Acronym Soup]

 

**Products and information listed are not endorsed by by PWSA (USA) or  PWSA MI.

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This page was last updated 03/12/08 

 
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