PWSA of MD, VA, and DC Resource Directory

February 2004

PWS CLINICS/CENTERS

University of Maryland Medical System

Prader-Willi Syndrome Center
Mt. Washington Pediatric Hospital
1708 West Rogers Ave.
Baltimore , MD
(410) 367-2222

Staff: Dr. Debra Counts, pediatric endocrinologist .

Nutrition consultations as needed. Referrals to other specialists as needed. The center schedules PWS patients one day each month.

Dr. Counts’ office:

University of Maryland Hospital
22 S. Greene St .
Baltimore , MD 21201
(410) 328-3410

The Kennedy Krieger Institute

Prader-Willi Clinic
707 N. Broadway
Baltimore MD 21205

For information or to schedule appointments, call (443) 923-2740. The clinic sees patients quarterly, on the 5th Tuesday of the month.

Staff:  Dr. Ann Scheimann, pediatric gastroenterologist

Nutrition, speech, behavior/psychology consultations available on clinic days . Referrals to other specialists, as needed (Note:  To be seen in either of the above PWS programs, patients must have documentation of the genetic diagnosis of PWS.)

The Children’s Institute

6301 Northumberland St .
Pittsburgh , PA 15217
(412) 521-9000

Program director: Ken Smith

(Formerly known as The Rehabilitation Institute, this facility is well known for its inpatient crisis intervention program for children and adults with PWS. It also features an outpatient clinic for PWS.)

Wake Forest University

Baptist Medical Center
Winston-Salem , NC
(336) 716-2899

Clinic coordinator: Carla Johnson

GENETICS CENTERS

The following centers are known to work with many individuals with PWS.

Children’s National Medical Center

Cynthia Tifft, M.D., Ph.D. (Chair)
Kenneth Rosenbaum, M.D.
Dept. of Medical Genetics
111 Michigan Ave. NW
Washington , DC 20010
(202) 884-2187

University of Virginia Health System

Dept. of Pediatrics
P.O. Box 800386
Charlottesville , VA 22908-0386
(804) 924-2665

Genetic counselors: Patricia Allinson, Carolyn Ohle

ENDOCRINOLOGISTS

Karen Armour, M.D.

Sinai Hospital of Baltimore
Pediatric endocrinology
2435 West Belvedere Ave., Suite 34
Hoffberger Professional Bldg.
Baltimore , MD 21215-5271
(410) 601-8331

Audrey Austin, M.D.

Children’s National Medical Center
Dept. of Endocrinology
111 Michigan Ave. NW
Washington , DC 20010
(202) 884-2121

Gail Blandin, M.D.

2041 Georgia Ave., N.W.
Washington , DC 20060
(202) 945-1263
(serves Kaiser HMO)

Debra Counts, M.D.

Univ. of Maryland Hospital
22 S. Greene St., Suite N5E23
Baltimore , MD 21201
(410) 328-3410
Prader-Willi Syndrome Center
Mt. Washington Pediatric Hospital
1708 West Rogers Ave.
Baltimore , MD
(410) 367-2222.

Leslie Plotnick, M.D.

Johns Hopkins Hospital
600 North Wolfe St .
Baltimore , MD 21287
(410) 955-8964
(410) 955-6463

Barry Reiner, M.D.

3001 South Hanover St .
Suite NA –159
Baltimore , MD 21225
(410) 347-3405
and
Columbia Medical Plan
Two Knoll North Dr .
Columbia , MD 21045
(410) 997-8940

Other physicians now using growth hormone for PWS:

(These names provided by Rhona Shapiro, R.N., MSN, a nurse educator with Innovex, Inc.)

Dr. Gary Wand                                         

Johns Hopkins (adult & adolescent endocrinology):
Suite 863 Ross Building
Baltimore , Md 21287
410- 955- 7225

Dr. Shehzad Basaria, Dr. Roberto Salvatori

Johns Hopkins (adult & adolescent endocrinology):
1830 E. Monument St
Suite 333
Baltimore , Md 21287
(410)  955-3921

Dr. Ann Scheimann (pediatric gastroenterology)

Kennedy Krieger Institute
Prader-Willi Clinic
707 N. Broadway
Baltimore MD 21205
(443) 923-2740.

Dr. Helena Rodbard (adult & adolescent endocrinology)

15001 Shady Grove Road, suite 320
Rockville Md 20850
and
5410 McKinley St
Bethesda , Md 20814
301- 251- 0909 for both offices

Dr. Dwight F. Matthias (adult & pediatric endocrinology)

Assistant Professor of Medicine
Eastern Virginia Medical School
855 W. Brambleton Ave
Norfolk , VA 23510
757- 446- 5970
 

PEDIATRICIANS

Ted Abernathy M.D.

Virginia Physicians, Inc.
8719 Forest Hill Ave.
Richmond , VA 23235
(804) 320-7161

Jon Farber, M.D. (developmental)

Alexandria and Lake Ridge Pediatrics Groups
4660 Kenmore Ave.
Alexandria , VA   22304
(703) 212-6600

Marcia Schwartz, M.D.

Columbia Medical Plan
Two Knoll North Dr .
Columbia , MD   21045
(410) 997-8940

Michael Sherlock, M.D.

Suite 27 , 1205 York Rd.
Lutherville , MD   21093
(410) 321-8822

Stephanie Sullivan, M.D.

Hopkins Pediatrics & Assoc.
1212 McConville Road
Lynchburg , VA 24501
(804) 237-8886

J. Ronald Walcher, M.D.

Kennedy-Krieger Institute (and private practice)
7401 Osler Dr .
Towson , MD 21204
(410) 321-7700
 

GENERAL PRACTITIONERS

Guy Fiscus, M.D.
 
500 Memorial Ave.
Cumberland , MD 21502
(301) 724-8665
 

NUTRITION/WEIGHT MANAGEMENT

Ann Scheimann, M.D.

The Kennedy Krieger Institute
Prader-Willi Clinic
707 N. Broadway
Baltimore MD 21205
(443) 923-2740.

Kathryn Camp, R.D., C.S.P. (pediatric nutritionist)

Walter Reed Army Medical Center
Department of Pediatrics
6825 16th St., N.W.
Washington , DC 20307
(202) 782-1962

Faith Hicks, R.D. (pediatric nutritionist)

Prader-Willi Syndrome Center
Mt. Washington Pediatric Hospital
1708 West Rogers Ave.
Baltimore , MD
(410) 367-2222.

Elizabeth Shipley-Moses (nutritionist)

Kaiser HMO
 

PHYSICAL MEDICINE & REHABILITATION

Katherine Alter, M.D.

National Rehabilitation Hospital
102 Irving St., N.W.
Washington DC 20010
(202) 877-1000
and
(301) 654-9160
 

NEUROLOGISTS

Peggy A. Hanson, M.D.

Professor of Neurology and Pediatrics
Georgetown University Medical Center
3800 Reservoir Rd., N.W.
Washington , DC   20007-2197
(202) 687-8785

Rebecca Ickord, M.D.

Johns Hopkins
Harvey 811
600 North Wolfe St .
Baltimore , MD 21287-8811
(410) 955-3805

Edwin Myer, M.D.

MCV Physicians
Medical College of Virginia
Richmond , VA
(804) 828-0442
 

ORTHOPEDIC/SCOLIOSIS SPECIALISTS

John Herzenberg, M.D.

University of Maryland Medical System
Kernans
Baltimore , MD
(410) 448-2500

Paul McAffee, M.D.

Director, The Scoliosis and Spine Center
Towson Orthopaedic Associates, P.A.
7505 Osler Dr., Suite 104
Towson , MD 21204
(410) 337-8888 or 1-800-678-4671

Paul D. Sponseller, M.D.

Johns Hopkins University
601 North Caroline St. #5212
Baltimore, MD 21287
410-955-6784 (appts.)
410-955-3137 (office)

Laura Tosi, M.D.

Department of Pediatric Orthopaedic Surgery
Children’s National Medical Center
111 Michigan Ave., N.W.
Washington , DC 200102970
(202) 884-2112

Steven Tuck, M.D.

Orthopedics
9715 Medical Center Drive
Rockville , MD
(301) 340-9200

Shriners Hospital

3551 North Broad St .
Philadelphia , PA 19140
(800) 237-5055
(800) 281-4050 (appointments, applications)

(Shriners is a 59-bed pediatric orthopedic hospital providing a specialized medical and rehabilitation services at no charge to children with orthopedic problems or spinal cord injuries. Provides treatment for scoliosis, hip disorders, leg-length discrepancies, and more. Services include surgery, orthotics, rehabilitation, radiology, therapy, etc.)

 

ORTHOTISTS (BRACE MAKERS)

Foot orthotics:

Greg Banks

BIO-LAB
Bio Prosthetic-Orthotic Laboratory, Inc.
41654 John Mosby Hwy.
Aldie , VA 20105
(703) 471-8555
(offices in Arlington , Va. , and Wheaton , Md. )

Cindy Fox

Orthotic Solutions
2802 Merrilee Dr., Suite 100
Fairfax , VA 22031
(703) 849-9200

Scoliosis braces:

Luke Stikeleather

Orthotic Solutions
2802 Merrilee Dr., Suite 100
Fairfax , VA 22031
(703) 849-9200

Fitting shoes for orthotics:

Ed Jurgrau

Shoe Train Ltd.
Cabin John Shopping Center
11325 Seven Locks Rd.
Potomac , MD 20854
(301) 299-9688

(Ed has fitted many kids who wear orthotics and provides great, personalized service at no extra charge.)

 

EYE DOCTORS

Marshall P. Keys, M.D.

Pediatric Opthalmology & Strabismus
121 Congressional Lane, Suite 601
Rockville , MD 20852
(301) 231-7070

Dr. Joanne Waeltermann, M.D.

Pediatric Opthalmology & Adult Strabismus
1011 Frederick Rd.
Catonsville , MD 21228
(410) 744-0400

Edward Parelhoff, M.D. 

8134 Old Keene Mill Rd.
Springfield , VA
(703) 451-6111

David Hunter, M.D., Ph.D.

Asst. Professor, Strabismus & Pediatric Ophthalmology
The Wilmer Eye Institute, B1-35
The Johns Hopkins Hospital
Baltimore , MD 21287-9009
(410) 955-8314  fax (410) 955-0809
 

DENTISTS

Jerome S. Casper, D.M.D.

Children's Dentistry & Orthodontics
2923-D Olney-Sandy Spring Rd.
Olney , MD 20832
(301) 924-5500
and
2225-G Defense Highway
Crofton , MD 21114
(301) 261-0414 or (410) 721-3393

Dr. Shultz

Kernan Hospital Dental Unit
2200 Kernan Dr .
Baltimore , MD 21207
(410) 448-6290

Dr. Roger G. Wood

Pediatric Dentist
Wood, Dunlevey & Lomba-dozi
11601 Robibus Rd., Suite 130
Midlothian , VA 23113
(804) 794-3498

Preston Shelton , D.D.S.

University of Maryland
U.M.F.D.S.P. Associates, P.A.
Faculty Practice
666 West Baltimore St .
Baltimore , MD   21201-1586
(410) 706-7970
 

PRIVATE THERAPISTS

Susan Falck-Muten (speech therapy)

Reston , VA
(703) 707-0090

Francie Mitchell (physical therapy)

VA
(703) 689-4451

Zahava Alon (physical therapy)

12023 Montrose Village Terr.
Rockville , MD 20852
(301) 984-7020

Diane Lewis (speech therapy)

Communication Enrichment Services
5109 Battery Lane
Bethesda , MD   20814
(301) 652-2220

Kathy Rodriguez (physical therapy)

Pediatric Therapy Associates
(301) 942-6006
Offices in Wheaton and Bowie , MD
Works with children from birth to age 15

PWS parents who are also therapists:

Linda Noll (physical therapy)

Rockville , MD
(301) 949-1756

Ellen Gootzit (occupational therapy)

Baltimore , MD
(410) 653-9534

Anne Benjamin (speech pathologist)

Cambridge , MD
(410) 228-7967
 

EARLY INTERVENTION PROGRAMS

Each state and the District of Columbia provide free early intervention services under the Individuals with Disabilities Education Act. There is a contact number for each state and each program within the state (called the “single point of entry”). The central numbers are:

Maryland Infants and Toddlers Program/Preschool Services

(800) 535-0182 (toll-free in Md. )
(410) 767-0261 (in Baltimore )  

Virginia Babies Can’t Wait

(Birth through age 2)
(804) 786-0992  
(Ages 2 through 5)
(800) 225-2020 (toll-free in Va. )
(804) 225-2675 (in Richmond )
 

DC Early Intervention Program

(202) 727-5930
 

BEHAVIOR

Sue Antell, Ph.D. (psychologist)

Greenspring Mental Health Services
5565 Sterrett Place
Columbia , MD   21044-2642
(410) 964-3666

Edwin Carter, Ph.D. (psychologist)

6116 Rolling Rd.
Springfield , VA
(703) 569-8731

Ramasamy Manikam, Ph.D. (psychologist)

Univ. of Maryland Hospital
22 S. Greene St. #N5E23
Baltimore , MD 21201
(410) 328-0812
 

Kennedy Krieger Institute

Feeding Disorders Program and Outpatient Behavioral Pediatrics Clinic
707 North Broadway, Rm. 216
Baltimore , MD   21205
(410) 550-9455

Gail Walter, Ph.D. (psychologist)

6937 Pindell School Rd.
Fulton , MD   20759
(410) 531-5087
 
 

CRISIS INTERVENTION

The Children’s Institute
6301 Northumberland St.
Pittsburgh, PA 15217
(412) 521-9000

Program director: Ken Smith

(Formerly known as The Rehabilitation Institute, this facility is well known for its specialized crisis intervention program for children and adults with PWS)

Cumberland Hospital