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To order, click on the Order Form button, print out the Publications
order form, fill it out and send it to the address printed on the form or call the
National Office at 1-800-926-4797.
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Down load this Brochure in
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Medical Alert: A Diagnosis and Reference
Guide for Physicians and Other Health Professionals
Syndrome summary for medical personnel and other providers who need a quick
introduction to PWS.
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Questions &
Answers On Prader-Willi Syndrome
The most asked questions about Prader-Willi Syndrome
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Prader-Willi Syndrome Weight and Behavior
Management
Suggested Do's and Don'ts for controlling the two major problems associated with PWS.
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Speech and Language and Prader-Willi
Syndrome
Summarizes speech problems associated with PWS and recommends ways to locate a
speech-language pathologist to assist a child of any age.
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My Child Has PWS - Now What?
Support and information for families of newly diagnosed infants and
children with PWS.
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Management of PWS in the Work Setting:
A Guide for Employers and Supervisors
Emphasizes careful supervision and consistency as keys to success; includes tips and
strategies and a brief overview of the syndrome.
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What Educators Should Know About
Prader-Willi Syndrome
Offers guidelines and strategies for helping the student with PWS stay
focused, develop skills and knowledge, and minimize problems associated with the syndrome
in the school setting. |
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Someone You Know has PWS
Basic information for relativies, friends, and neighbors of people with PWS.
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Shelly Has Prader-Willi Syndrome,
where dieting is a lifetime struggle...and food is a killer. |
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PWSA (USA)
General information about the syndrome and the Prader-Willi Syndrome Association. Designed
for awareness and fund raising. |
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edited: 06/10/2009