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PRADER-WILLI SYNDROME
AWARENESS AND THE MEDIA

Get Prader-Willi in the News!  Contact editors of your local media including feature, news and health editors.  Use these tools to help...

When creating your media contact list, remember to include increasingly popular Web casts.

KEY MESSAGING ON PWS

The Four Most Important Key Messages:

  • Prader-Willi syndrome is the most common known genetic cause of life threatening obesity in children.
  • Prader-Willi syndrome is a life-long condition and currently there is no cure.
  • Research on Prader-Willi syndrome is the window of opportunity to finding the cure for ALL obesity.
  • You can make a difference by becoming a financial supporter or volunteer for PWSA (USA). Your support is critical to fund research and generate awareness so families can receive a diagnosis and education early in their child’s life.
Other Key Messages:
  • PWS is a non-inherited genetic disorder of chromosome 15 which causes children to have a constant sense of hunger, slower metabolic rates, learning disabilities, speech issues, and weak muscle tone.
  • PWS occurs in approximately 1 out of every 12-,000-15,000 births and equally affects both males and females and all ethnic backgrounds.
  • PWS symptoms are caused by a dysfunction of the hypothalamus in the brain which regulates hunger and many other systems in the body. Individuals with PWS feel hungry most (if not all) of the time and yet can only eat about half the calories of an average person.
  • Together, we can work to make this the first generation of children with PWS who do not have to spend their lifetime suffering from constant hunger.
  • An early diagnosis saves lives. You can make a difference. Please help our children be healthy, happy and free from hunger.
Mondo Times - find contact information of all newspapers, TV, radio stations in the world. You can send an e-mail, fax or mail your press releases.

 

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