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Phone: 800-926-4797 or 941-312-0400

 


PRADER-WILLI SYNDROME AWARENESS

May is Prader-Willi Syndrome Awareness Month

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Please help spread awareness of Prader-Willi syndrome and help save lives.

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Please help to create a compassionate environment for those who bravely struggle with this disorder, living in a world where the biggest threat to their lives is food—the very item they need to live.

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Please help create acceptance of our loved ones with PWS, who struggle in a society that shuns those who are overweight.

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Those with PWS just want to live a healthy life with acceptance of who they are, just like anyone else.

 

Did you know?

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Donate Now!

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Population 75% are unknown!

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Fact Sheet (PDF)

bullet Touching Stories
bullet What's Happening

You can help spread awareness

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Educational Efforts - Suggestions to bring awareness to your community.

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Fundraising - Ideas, Lose-A-Thon, Walk-A-Thon, and other fun suggestions.

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Advocacy - Government awareness, Public Service Announcement, Proclamations.

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Media - Press Releases, Public Service Announcement, Key Messaging and obtaining interviews.

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Wrist Band Sale - Promote Awareness, wear red wristbands!

bullet Order Awareness Items
bullet Other Awareness Ideas from Your PWS Awareness Committee
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Contact your local chapter

Click Here for tools you can use

Clint Hurdle, manager of the Colorado Rockies baseball team, is national celebrity spokesperson for Prader-Willi syndrome.

Click here to see our public service announcement (PSA) with Clint and Madison Hurdle.

Call PWSA (USA) at 1-800-926-4797 to order useful DVD and brochures

Prader-Willi Syndrome Association (USA)
8588 Potter Park Drive, Suite 500
Sarasota, Florida 34238
Telephone: (800) 926-4797 or (941) 312-0400

 

Special thanks to our Awareness Committee

Carroll Beeson, Cindy Galyean, Sarah Garrett, Lori Guthrie, Karyn Ogata Jones, Vicki Knopf, Dawn Romine and Lisa Varndell.

 

edited: 04/04/2008

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