Doctors and medical
professionals need to learn about PWS, too. Plan to educate personal physicians
(pediatrician, general practitioner, etc.), nurses, ER personnel in the hospital
& other relevant departments. Ask to provide a training wherever you think it’s
necessary. Ideas you can use:
Send a letter
requesting to conduct a training or just to provide
information about PWS. Include:
PWSA (USA) brochures, such as the Q&A or Someone You Know Has PWS brochure
Fliers
Picture of your child
or another individual with PWS
PWSA (USA) contact
information and Web site
Create a PWS Informational Hanging
Folder that includes important information about PWS and contact information to
PWSA (USA) should there be questions. Mail or hand deliver the folder to medical
professionals and ask them to file the folder with other important health
information.
Ask your doctor to schedule
presentations to his colleagues in hospitals, clinics and private practices, and
tell him/her you would be pleased to accompany him/her with your child with PWS.
Your doctor can comfortably use medical jargon about PWS. Provide Medical Alert
booklets and other brochures. As doctors and medical professionals are busy,
suggest it be no more than ½ hour in length.
With permission, leave
informational items about PWS in the waiting rooms at doctor or therapist
offices or the like as reading materials for those who are waiting.
