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US Senate Resolution Supports Designation for National Prader-Willi Syndrome Awareness Month
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On May 27, 2010, another significant milestone occurred for Prader-Willi syndrome (PWS). Senator Robert Menendez (D-NJ) sponsored and Senators Patrick Leahy (D-VT) and Benjamin Cardin (D-MD) co-sponsored and submitted to the US Senate S. Res. 543 “Expressing support for the designation of a National Prader-Willi Syndrome Awareness Month to raise awareness of and promote research on the disorder.” The 111th Congress 2d session considered and agreed to the resolution without amendment and with a preamble by unanimous consent. Both houses in US Congress have now recognized a National PWS Awareness Month. In December 2009, the US House of Representatives passed House Resolution 55, introduced in the House of Representatives by Reps. Ed Royce (R-CA) and Jane Harman (D-CA).

With backing by recognition and support from US Congress, those affected by PWS can go forward with other agenda items of importance to its population and cite these resolutions, which will provide more credibility for work ahead. Specifically, the Senate resolution states:

Whereas advocacy organizations have designated May as Prader-Willi Syndrome Awareness Month: Now, therefore, be it

Resolved, That the Senate—

(1) supports raising awareness and educating the public about Prader-Willi syndrome;

(2) applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by Prader-Willi syndrome;

(3) recognizes the commitment of parents, families, researchers, health professionals, and others dedicated to finding an effective treatment and eventual cure for Prader-Willi syndrome; and

(4) expresses support for the designation of a National Prader-Willi Syndrome Awareness Month.

Prader-Willi Syndrome Association (USA) gratefully acknowledges Senators Menendez, Leahy and Cardin. Additional special thanks go to grandparent, Peter Fleischmann, who was instrumental in this latest successful effort.

To read the full resolution text, go to http://thomas.loc.gov/cgi-bin/query/z?c111:S.RES.543:

To contact and thank sponsoring Senators, go to:

Contact Senator Menendez: http://menendez.senate.gov/contact/
Contact Senator Leahy: http://leahy.senate.gov/contact/
Contact Senator Cardin: http://cardin.senate.gov/contact/

Edited: 02/09/2012

 

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