We are very
pleased to announce that the Prader-Willi Syndrome Association USA
and the Foundation for Prader-Willi Research will hold a joint board
meeting on September 11, 2010 in Washington, DC. The purpose of the
meeting is to strategize about the future needs of individuals with
PWS, their families, and their care providers, and to identify
potential solutions in the areas of both care giving and research.
We will also focus on how the two organizations can work together to
meet these future challenges. We, as the leadership of PWSA and FPWR,
are excited about the meeting and the opportunities it will create
for us to work together to accelerate progress in serving the
Prader-Willi syndrome community. We will keep you informed.
President, FPWR and John Heybach, Board Co-Chair, PWSA-USA