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Prader-Willi Syndrome Association (USA) and the Foundation for Prader-Willi Research joint board meeting

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We are very pleased to announce that the Prader-Willi Syndrome Association USA and the Foundation for Prader-Willi Research will hold a joint board meeting on September 11, 2010 in Washington, DC. The purpose of the meeting is to strategize about the future needs of individuals with PWS, their families, and their care providers, and to identify potential solutions in the areas of both care giving and research. We will also focus on how the two organizations can work together to meet these future challenges. We, as the leadership of PWSA and FPWR, are excited about the meeting and the opportunities it will create for us to work together to accelerate progress in serving the Prader-Willi syndrome community. We will keep you informed.

 

Thanks,

 

Alice Viroslav, President, FPWR and John Heybach, Board Co-Chair, PWSA-USA

edited: 02/09/2012

 

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