If a person with PWS is experiencing a medical crisis or problem we can help
in the following ways:
- A Medical Crisis Counselor is available to assist you with medical
calls and questions during the hours of 10-5PM EST Monday through Friday
by calling 800-926-4797 or 941-312-0400.
Note: Any voicemail messages left after the PWSA (USA) office is
closed will be returned promptly the next business day. If you are
calling about a medical emergency please seek medical attention
immediately from your local physician or emergency room or by dialing
- We provide 24/7 access on our website to important medical alerts
and other medical information useful during a medical crisis. To view
and download our current alerts, please click here
- Through contacting our Medical Crisis Counselor we can fax and/or
e-mail medical information to physicians and other medical professionals
and facilities and in some situations we may be able to set up a
“physician to physician” consultation.
- We distribute to families a copy of our Medical Alert Booklet which
includes many of the most important medical alerts to share with
physicians and Emergency Room staff. If a family cannot afford the cost
of the Medical Alert booklet a copy will be provided for free. If you do
not have a copy please contact our office. A copy of the medical alert
booklet can also be downloaded click here.