PWSA (USA)’s 34th National Convention

November 15 – 18, 2017

Caribe Royale | Orlando, Florida

Schedule of Events / Committee Chairs

Convention Co-Chairs: Jackie Mallow & Michelle Torbert

If you have any questions regarding the PWSA (USA) 34th National Convention, please contact Jackie Mallow at

To make your reservations at a PWSA (USA) discounted price at the Caribe Royale in Orlando, FL please click here

Click Here for Disney tickets.

These Disney tickets offer pre-arrival savings of 10% on our Full-Multi-Day (2 days or longer) Tickets and include a complimentary bonus visit to an additional Disney Experience at any one of the following (additional details are listed on the web site):

  • Disney’s Typhoon Lagoon Water Park
  • Disney’s Blizzard Beach Water Park
  • Disney’s Winter Summerland or Disney’s Fantasia Gardens Miniature Golf Courses (before 4 p.m.)
  • A round of golf at Disney’s Oak Trail Golf Course

Wednesday, November 15th

  • Chapter Leaders Meeting –  Crystal Boser/Rob Seely
  • Chapter Leaders and New Parent Mentor Reception
  • Clinical Advisory Board Meeting – Dan Driscoll
  • Scientific Advisory Board Meeting – Merlin Butler
  • Professional Providers Advisory Board Meeting – Patrice Carroll/Mary K Ziccardi

Thursday, November 16th

  • Chapter Leaders and New Parent Mentors Meeting – Crystal Boser/Rob Seely & Lori Moline/Diane Seely
  • Medical & Scientific Conference – Merlin Butler supported by Dan Driscoll/Jim Loker/Kathy Clark & Ann Manzardo
  • Professional Providers Conference – Patrice Carroll/ Mary K Ziccardi
  • Medical & Scientific Reception
  • Welcome Reception/General Conference – Debbie Peaton

Friday, November 17th

  • Rare Disease – Merlin Butler
  • General Gala – Debbie Peaton/Kristi Rickenbach
  • YAP Gala – Debbie Peaton/Kim Tula

Friday and Saturday, November 17th & 18th

  • PWSA (USA) General Conference – Kristi Rickenbach
  • Youth & Infant Program – Michelle Holbrook
  • Youth & Adult Program – Kim Tula
  • Sibling Program – Tammie and Rockie Penta

Registration Below

General, Medical & Scientific, Providers &
Chapter Leader's, New Parent Mentors Registration

Please join us for a fun, educational and inspirational PWS weekend. 

YIP Ages 0-2, YIP Toddler Ages 2-6 , YAP Ages 7-Adult & Siblings Registration

An awesome time for your child to experience. Memories that will last forever!

Volunteers, Speakers & Sponsorship/Exhibitor Registration

Be part of spreading joy and education to all. Have your company help Save and Transform Lives!

Thank You To Our Sponsors!